Okay, its not all bad its getting better every day!

Hey everyone, I don’t want you to get the impression that the whole situation is horrible because it is not.  As of this day, the surgeon released me and I don’t have to come back.  I am recovering.

In fact, I am getting stronger every day and today is the day I quit taking my pain meds. We will see how that goes. Its a little frightening but its also time, I need a clear head.  And maybe, that will help with stopping some of this emotional reaction to everything.

The hormone blocker medication seems to be working. I am not having any side effects and I feel warmer each day. I have been cold throughout this entire process.  I still wear my beanie hat though.

I have many things to be grateful for:  not losing my hair, my arm is starting to work again and I have new exercises to do.  In a year the surgeon said, I won’t even be able to tell (whether that was comforting or not; the verdict is still out…a year?). And the cancer is gone.

So the sun is out in Seattle today.  I am feeling good. So I am getting off here and going out to find a Christmas tree.  I am just thankful. Today will be a day of thanks.  :)

Take care and see ya tomorrow!

Bonnie

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50 I Remembers – Fifty feelings about Breast Cancer Diagnosis

In college, I took a class from Nancy Bayer, who had us write a chapbook on 50 I remembers in our life, so I give her credit here for the idea.  If you ever want to find out what’s going on in your brain; sit down and just pour out 50 I remembers.  It makes great holiday table discussions with family – NOT!!

1.  I remember the doctor calling and her voice saying I am sorry, it is cancer.  I was in a field walking my dogs.  Isn’t technology handy, it can bring news anywhere.

2.  I remember wondering who could I call now.  My Mom has Alzheimer’s and doesn’t know me.

3.  I remember being so scared at the first appointment with the oncologist.  Where did my regular doctor go?  Who is this guy?

4.  I remember the weeks of recovering from the biopsy.  I remember the tears.  Twenty two hours of non stop bleeding.  Just apply pressure they said.  You don’t  need pain pills.  #$)*$ them.

5.  I remember the awareness of no more feeling in that breast, after the first lumpectomy.  It was a minor relief from the pain but a horror of the reality. No feeling?  Its been four months. What are unclear margins?

6.  I remember how kind the medical people were.  I constantly needed things repeated to me. No they didn’t get it all.

7.  I remember wondering if I would ever swim again.  My left arm didn’t work right.  Was this part of it?

8.  I remember wondering who would love me looking like this, and that was after surgery number one.  I should have waited until after surgery 3 to worry about that.

9.  I remember telling the surgeon he had given me the Wal-Mart version not the Nordstrom version.  It really didn’t matter because later he had to remove it all.  Rest In Peace Lefty.

10.  I remember teeth coming loose from  the removal of throat tubes when they pulled them out.  I am suppose to be ‘positive’ and not frightened with this.

11.  I remember taking the pills to keep the terror of fear at bay.  Now I don’t dare to  not take them.  Pills became my closest friend.

12.  I remember the feeling of estrogen in my body racing, feeding the cancer and the hope that the hormone blocker would work.  The verdict is still out.

13.  I remember surfing the web and reading what my future would be.  It was scary and good.  My sense of security, stability and confidence were imploded like the destruction of a building.

14.  Most of all I remember the stupid things people said to me.  I could write a whole book on this topic.  I release them and let it go. Others, like family, just stayed away.  It all hurt.

15.  I remember when I forgave myself.

I am not writing any more about this today because I can’t quit crying.

 

 

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Don’t Take My Coffee too! The Starbuck’s Logo dances in my Head!

The literature is showing that estrogen levels can be increased by drinking as little as 200 mg of coffee a day which is the equivalent of two cups!

Give me a break!  I loose my breast and they want to take my coffee away ?  I have turned into a whiner.  There are few things I really enjoy, and my morning cup of coffee is one of them.

I live in Seattle for God’s sake. You can’t take away my coffee!!! Last night I dreamed about the Starbucks LOGO and Peppermint Mochas for Christmas.

Here is a link, I  hope this works, you might have to cut and paste but it discusses estrogen and coffee.   Estrogen is the evil that feeds my cancer, or fed my cancer.  The cancer is gone.  But the estrogen is fighting to gain control.

http://www.everydayhealth.com/womens-health/0130/caffeine-may-alter-womens-estrogen-levels.aspx?xid=tw_womenscancer_20120205_caffeine

But  my health is the most important thing.  I am discovering that cancer is about loss.  Next Monday, I will give up coffee.  Good bye Keurig coffee maker, cream and sugar….hello what?  warm water?

LOL….we must keep our sense of humor, and develop tools of resistance to win the war and become the warrior, whipping through the estrogen, flushing it away and winning the prize – LIFE.  After all, that’s what this is all about.

Thanks for following!  More information and tips, as I gather my thoughts.  If you have to have cancer, Seattle is a great  place for it because there are so many resources for support, shopping for clothes (Nordstrom  and others can fit you and nobody knows), and finding a good “Breast buddy”  (isn’t that funny?).   Maybe I am gaining my sense of humor back.

Today is 12/12/12  It only happens once.  And I am going to get out and get living!  Have a great day!

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Yikes there’s hair growing on my chin!

Okay, what’s up with this?  I get up this morning and I have a white hair about THREE!!!! inches long coming out of my neck. How long has that been there?  I don’t think it was there yesterday. What is going on in my body.  Things grow like crazy.

I have to admit before I learned I had cancer, things had started to change.  I couldn’t concentrate.  I fatigued so easily I took naps all afternoon.  I was working, but I could not function after 3 pm. I would go hide in the bathroom and take a 20 minute meditation nap and try to regroup.  I coughed all the time especially in the afternoon.  The doctors later told me that was nothing. I know it was something. It was horrible.  There were no other cold symptoms.  It went away after I had the first lumpectomy which took out the ‘invasive’ cancer.

By the way, my cancer was so small.  They said 1.3 centimeters.  In one place only and it was called invasive ductal carcinoma, hormone positive for both estrogen and progesterone.  The other site was about an inch west, and it was ductal ‘in situ’ carcinoma.  In other words it was contained within the duct itself, but it turned out to be in a very large area.  I didn’t know anything about breasts.  Isn’t that bizarre that we really don’t know or care most of the time, how our body works.  We take it for granted.

We are so stupid to take health for granted. So Stupid to just go around each day in ignorance.  “Sure, I will have that extra glass of wine, and throw in one of those chocolate croissants too.”  Not that you can’t eat those things once in awhile but I had always done whatever I wanted to do all my life, pretty much.  And the twist here, is I have type II diabetes also.  I have had that for ten years.  Talk about playing with a loaded gun.  That loaded gun was a warning for me which I did manage, but I could have done a better job.  Coulda, woulda, shoulda, shame on me for thinking that.

I will jump in here and tell you that in the past year I had lost a lot of weight. I walked daily!  One or two miles religiously at lunch time.  I felt fantastic, but the fatigued moved in to cloud my brain every day about three pm.   I ignored it and pushed forward.  I was down four sizes, was cold all the time and went straight to bed after dinner, which was usually 5:30 in the afternoon.  I only got out of bed to let my dogs out again about 11, and I slept till 5 the next morning. Everyday.   I slept with a beanie hat on (I still do).  I was cold.

In July, the cough was back and it was worse.  I showed up for board meetings at the place I was working, and people just looked at me, and I knew they thought I had the plague.  I went to the doctor but he said it was bronchitis.  again?  I still doubt this but nobody will say anything else.   I finally had a chest x ray after the cancer was diagnosed.  On July 27th, I got laid off from my job, and I still think it was that darn cough.  One idiot at work asked me if I had been checked for HIV.  Oh, thanks buddy.  The x-ray and other tests were negative.

I decided to go get a physical while I still had insurance, till the end of July.   Enters the mammogram, standard, I wasn’t afraid of that.  There is no cancer in my family.  Certainly no breast cancer, that I knew of, or still know about.

The most bizarre thing occurred to me when I had the mammogram.  When it was over, I was talking to the technician and she said it looked fine to her.  I remember putting my arm into my sleeve of my jacket, and at that moment I seen in my brain, or visualized a long silver thin rod and I had like a snapping.  Weird.  I walked to the elevator, and pushed the button and I was more afraid than I had ever been in my whole life.   The results were back the next day.  Come in for another mammogram, we definitely found something.

 

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Life Turns Left

Hello Everybody! This site was formed to assist you in the healing and organization of your knowledge, wisdom and challenges of facing a disease in your life. In my case, it’s the infamous breast cancer! Although you might be cursed with some other thing like MS or whatever, I hope you can find compassion, honesty, and support on this site. In my own search, I felt so alone. I didn’t know what to ask, or whom to ask what! The medical community means well, but they aren’t there with you after Jay Leno shuts out the lights for the evening. It’s just you and the sheets.

My cancer journey is new, just starting this last summer. I am continually reminded how lucky I am. Its only Stage II, hormone positive, invasive without lymph node involvement. It will only be a lumpectomy and you will be on your way to radiation, and home free. I can do this I thought. No problem.

Well just like the cancer came unannounced in the night like a thief, it didn’t work out to be one lumpectomy either. The sneaky little cells just wouldn’t give up the good fight. Okay, ‘it will just be one more lumpectomy’ and then you’ll be done. Nope. Bad margins again. You will come to learn these terms. Its amazing how cancer or disease can increase your vocabulary almost overnight.

After the third try, it was determined I had to have a total mastectomy. Now there is an interesting word, because I was told I had already had the mastectomy earlier…turns out it was only partial. Read up on mastectomies for late night horror reading. Sigh….how many ways to remove a breast!

The strange thing for my case, and I don’t mean to be sarcastic or flip here, because it is a serious topic, but my cancer was here and gone before I even adjusted to the fact I had cancer. They tell me now, it is gone. But, it isn’t over, until it’s over. I have to take hormone therapy treatment for five years. More on that later. So, supposedly, and I guess I believe it, yes I believe it, my cancer was removed. I still have what caused it though, high levels of estrogen. I still have one more breast. It’s supposed to be okay. But there comes this little word…doubt. It hides and lurks in the shadows at night. That’s what cancer does best…cause fear.

 

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